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  • Not Just a Treatment…
    A CURE.

    You (yes, you!) can help us find
    a cure for HAE.

    Learn how »

  • HAE is rare and

    potentially life-

    HAE symptoms include episodes of edema (swelling) in various body parts.

    Click here to learn more »

  • Now open…

    The Angioedema Center at UCSD

    Staffed by the world’s most foremost
    HAE physician/researchers,
    The Center can be an amazing
    resource for you!

    Click here for details >

  • 1222 enrolled & counting…

    Our Scientific Registry allows
    researchers to better study HAE,
    working towards finding cures and
    improving patient care.

    Enroll in the Scientific Registry»

Living With
Hereditary Angioedema

A genetic, inheritable disease, HAE can affect all aspects of your life.

Take time to read through the authoritative disease and treatment information found in our WHAT IS HAE? printable brochure.

Visit our 'Get Connected' page for resources for living with HAE.

Read a quick patient Q&A with an HAE physician expert »

Angioedema Center

Designed to provide a positive experience that features exceptional care by expert HAE physician/ scientists in a friendly and supportive environment.

Working toward a better future for those who suffer from all types of angioedema.

Find out more »

Become a Member

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Patient Services

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Scientific Registry

help us find a cure

  • News
  • Links
  • Events

Dec 18, 2014
BioCryst Initiates OPuS-2: A Clinical Trial of BCX4161 in Patients With Hereditary Angioedema
Read more>

Nov 03, 2014
Salix and Pharming Announce the Launch of RUCONEST® in the U.S. for the Treatment of Acute Angioedema Attacks in Patients with Hereditary Angioedema (HAE)
Read more>

Nov 03, 2014
Dyax Corp. Announces Expansion of Phase 1b Clinical Trial for DX-2930
Read more>

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