February 2024

Topics include:
• Working to Protect Financial Assistance for HAE Medications
• Act Now, So Elected Officials Understand the Need for Continued Access of HAE Medications
• HAEi Americas Regional Conference Takes Place in Panama March 15-17
• Take Advantage of the 2024 Scholarship Opportunities for People with HAE
• Connect with Others in the HAE Community at an Upcoming Meet and Greet
• HAE Speaks Podcast: Create An Impact with a DIY Event
• HAEA Care Groups: Rare Disease Day Celebration
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

January 2024

Topics include:
• 25 Years of the HAEA Protecting the HAE Community
• From the HAEA Board of Directors
• Help Your Child Meet HAE Friends Through the Brady Club Pen Pal Program
• Join the Next Generation of HAEA Leaders with the Youth Leadership Programs
• HAEA Community Blog: 2023 Rare Youth Fest Recap
• #BeyondHAE Podcast: A Day in the Life of A Young Woman with HAE
• HAEA Care Groups: Tips for A Happy and Healthy New Year
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

December 2023

Topics include:
• Message from Tony Castaldo
• Choose the Best Health Insurance Option for You in 2024
• Invest in the Future of HAEA Youth
• HAEA Community Blog: Reflections from the 2023 US HAEA National Summit
• HAE Speaks Podcast: Kate is Living Beyond HAE
• HAEA Care Groups: Celebrations and Reflections
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

November 2023

Topics include:
• Court Ruling Favors Access to Therapies for Rare Disease
• Re-Enroll in Charitable Assistance for 2024
• Choose the Best Health Insurance Option for You in 2024
• Brighten the Future for HAEA Youth Through the Families4HAE Campaign
• You Are Not Alone: Meet HAEA Friends in your Community
• Your HAEA Hero: Nominate that Special Caregiver or Healthcare Professional
• HAEA Community Blog: Sheena’s First-Time Experience at the 2023 US HAEA National Summit
• HAE Speaks Podcast: Finding a Diagnosis After 25 Years
• #BeyondHAE Podcast: A Parent’s Heartfelt Experience as an HAE Caregiver
• Struggling to Cope with HAE? Participate In the HAEA Care Groups
• Clinical Trial Updates
• Check Out Exciting Upcoming HAEA Events
• Social Media Snapshots

NEWSLETTER

October 2023

Topics include:
• Re-Enroll in Charitable Assistance for 2024
• Medicare Research Survey
• HAE IN-MOTION®
• HAEA Hero Recognition Program
• Youth Advocacy Month
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Podcast
• HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

September 2023

Topics include:
• 2023 HAEA Virtual Capitol Hill Day
• HAE IN-MOTION®
• HAEA Community Blog
• Baby Boomer Meet and Greet
• Pam King HAEA Scholarship
• Host A DIY Event
• HAEA Cares Kits
• HAE Speaks Podcast
• #BeyondHAE Podcast
• HAEA Care Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

August 2023

Topics include:
• Share your Summit Feedback
• Lois Perry joins the US HAEA Board of Directors
• Medicare Webinar
• 2023 HAEA Virtual Capitol Hill Day
• HAE IN-MOTION® - Step It Up for HAE Event
• 2024 HAEi Regional Conference
• Track Your HAE Using the HAE TrackR App
• Baby Boomer Meet and Greet
• Pam King HAEA Scholarship Program
• HAE Speaks Podcast
• HAEA CARE Groups
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

July 2023

Topics include:
• Advocacy Corner
• HAEA Study on Insurance Denials
• HAE Speaks Podcast
• BeyondHAE Podcast
• Support Groups
• HAEA Community Blog: HAE At A Young Age
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

June 2023

Topics include:
• 2023 hae day :-)
• Major Medical Journal Publishes HAEA-led Study on Negative Impact of Insurance Denials
• Support Groups
• HAEA Community Blog
• HAE Speaks Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

May 2023

Topics include:
• hae day :-) is on May 16th!
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• New Member Meet & Greet
• Support Groups
• HAEA Community Blog: hae day :-)
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

April 2023

Topics include:
• 2023 hae day :-) Celebration
• Parents and Caregivers Virtual Meet and Greet
• HAEA Youth Advocacy Network Welcome to Congress Training
• Share Your Impactful Memories with Lois Perry!
• Support Groups
• HAEA Community Blog: Adina
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

March 2023

Topics include:
• Advocacy Corner
• 2023 US HAEA National Summit
• Support Groups
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

February 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• 2023 Legislative Update and Welcome to Congress
• Pam King HAEA Scholarship
• Support Groups
• Open Enrollment Season
• HAEA Community Blog: Brandie
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

January 2023

Topics include:
• Protecting Financial Assistance
• 2023 US HAEA National Summit
• Open Enrollment Season
• Families4HAE
• New Year, New Coping Skills
• HAEA Community Blog: Ava
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar
• Social Media Snapshots

NEWSLETTER

December 2022

Topics include:
• 2023 US HAEA National Summit
• Message from Our President
• Shared Decision Making Tool
• Open Enrollment Season
• Families4HAE
• Original US HAEA Initiated Research
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates

NEWSLETTER

November 2022

Topics include:
• Support #Families4HAE
• Don’t Miss Health Insurance Open Enrollment
• UCA Coverage and Access Forum
• Caregiver Appreciation Month
• HAEA Community Blog
• HAE Speaks Podcast: A Focus On Advocacy
• #BeyondHAE Youth Podcast: Ally’s Management Journey
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

October 2022

Topics include:
• Celebrate Youth Advocacy Month
• Health Insurance Open Enrollment Announcement
• Nominate Your Caregiver!
• HAEA Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

September 2022

Topics include:
• Health Insurance Open Enrollment
• Back To School
• Pam King HAEA Scholarship
• Community Blog
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

August 2022

Topics include:
• HAE IN-MOTION^®
• Pam King HAEA Scholarship
• Advocacy Action Alert
• Back To School
• Women With HAE
• Health Team Update
• HAEA Healthcare Hero Recognition
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• HAEA Events Calendar

NEWSLETTER

July 2022

Topics include:
• HAE IN-MOTION^®
• Advocacy Action Alert
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

June 2022

Topics include:
• HAE IN-MOTION^®
• Quality of Life Survey
• HAEA Round Table
• Women With HAE
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

May 2022

Topics include:
• hae day :-)
• Women With HAE • Virtual Capitol Hill Campaign
• Voter Voice • HAEA Round Table
• Physician Spotlight
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

April 2022

Topics include:
• hae day :-)
• HAEA Virtual Capitol Hill Campaign
• HAEA Round Table
• Health Team Update
• Music Therapy Program Scholarships
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER

March 2022

Topics include:
• hae day :-)
• Protect the Rights of People with HAE!
• Pam King HAEA Scholarship
• HAEA Round Table
• Health Team Update
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER

February 2022

Topics include:
• Heart Health Month
• Rare Disease Day
• 2022 Legislative Update
• Pam King HAEA Scholarship
• HAEA Round Table
• Physician Spotlight
• Community Blog
• HAE Speaks Podcast
• #BeyondHAE Youth Podcast
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greet

NEWSLETTER

January 2022

Topics include:
• Happy New Year 2022
• Newsletter ReDesigned
• HAEA Round Table
• Health Team Checklist
• Physician Spotlight
• Community Blog
• Podcasts
• Clinical Trial Updates
• Education Webinar
• Virtual Meet & Greets

NEWSLETTER